DesBio Series Therapy for Epstein-Barr virus, round 3, vials 1-3 (with brief summaries of rounds 1 and 2)
I totally wish I had started these in depth reviews earlier, but as they say, could've, should've, would've doesn't get you anywhere productive. So I'm just gonna start these reviews for the DesBio EBV series as I'm taking it now. I'm currently on round 3, meaning I've done two complete rounds from February till now, and I'm now on my third box of vials.
I'm taking this third round from vial 1-10, so the strongest to the weakest, and I'm still only taking half a vial every 5 days because holy herxes! These EBV herxes, as all herxes, are essentially a magnification of EBV symptoms (fatigue, weakness, no appetite, nausea, sleeping all day).
I actually will be taking the second half of vial 4 tomorrow evening, so I'm gonna try to summarize my experience with vials 1-3 in this third round, and then once I'm finished herxing from vial 4, I may update again. Depending on how much I have to say, though, I may keep updating 2-3 vials at a time. We'll see how it plays out.
But a short recap of my first round (taken over the course of mid-February through late May, vial order 1-10, strongest to weakest doses, 1/2 a vial every 5 days) and my second round (taken late May through late August, vial order 10-1, weakest to strongest, 1/2 a vial every 5 days) would be good to have just as a reference point before I discuss how this third round is going thus far.
Round 1: Basically every single dose in this first series had me herxing for days on end, even when I got to the weakest half-doses. For the first 3 days after each dose my fatigue was so severe that I couldn't leave bed, couldn't even move my hand to use a remote or phone, couldn't dress myself, had to be carried to the bathroom, slept all day long, had massive headaches, and wasn't able to eat or drink anything for three days (after the first day I was able to choke down a little water, but the absolute zero appetite that comes with EBV was so severe that even the thought of having to drink water made me feel like I was going to start vomiting. Thankfully, the last 2 days of the 5 day schedule I was able to eat as "normally" as anyone following the lyme diet can, and then once I took the next dose, all of this repeated. This lasted pretty much the whole first series. Vials 9 and 10 seemed to make me herx a little less, but I was still bedridden/couldn't function for 2-3 days with every dose in this first round.
Round 2: Compared overall to the first series, we saw a little improvement with this second series. Since I took the doses backwards this time around, from weakest to strongest, the first doses weren't as much of a shock to my system as the first doses of round 1. Once I got to vial 8, though, I was back to almost the same reactions I had throughout the first series, except with vials 8-5 I noticed that I was only completely bedridden with the above symptoms the first two days and then days 3-5 after each dose I was able to start eating light-to-normal-for-me meals before the next dose knocked me down. Doses 4-1 absolutely kicked my butt again, but even with that, vial 1, the strongest, didn't have me herxing quite as intensely for as long as I did in the first series. Again, I was out of commission for 2 days following doses, but then on day 3, even when we got back to the strongest vials, I was able to have my husband carry me to the living room so I could lie on the couch and watch TV or Netflix with him (I usually fell asleep, but this was still progress!).
Now, onto round 3!
This third series has been a truly crazy journey so far. I started the series in late September, a couple weeks after my appointment with my amazing doctor, and it had been about a month since I had completed round 2, which means I had done no specific EBV treatment for a month. Also, I completed my 30 days of 200mg of Diflucan around the same time as I completed round 2, so other than my daily supplements and detox, I had taken a month off of actual killing-buggers-treatment. But having the Lyme brain that I do (or perhaps just being a person who has always hated metaphorically treading water), I didn't think through the fact that things probably wouldn't go too well if I resumed taking the Diflucan AND started my third EBV series after being off of all actual treatment for a month. I quickly learned that is something I will never do again--the combination of Diflucan and half of vial 1 was enough to put me in a position where I was unable to eat or drink for 5 days (including water), and therefore ended up in the hospital to get fluids and keep me stabilized (discovered I have bad reactive hypoglycemia, as well). After spending the following 5 days in the hospital at the end of September, we decided to hold off on my EBV treatment for a while--largely due to the fact that I had a tooth extraction to take care of the trigmeinal neuralgia-causing jaw bone cavitation I've mentioned on my main page, after which I developed dry socket and it took over a month to heal/grow back completely. Obviously, since I was trying to keep that socket clean until it healed, I didn't exactly think swishing EBV around in my mouth for a minute would be a good idea. In fact, it would have been counterproductive and would have made the extraction pointless if I was just putting more bugs in the opening, and after the hellacious set socket experience (I'm prone to them, I've learned), I was NOT letting it all be in vain.
So again, the entire month of October, I wasn't able to continue with round 3 of the EBV series. I was, however, able to continue taking my Diflucan, which I now take once a week instead of daily (systemic candida is a pain in the you-know-what to get rid of, goodness), and I knew better than to take my Diflucan the same day I resumed round 3 in mid-November. Over the past 3 and a half weeks, I've taken the second half of vial 1, as well as vials 2 and 3, and the first half of vial 4 (which again, I'll report on vial 4 in its entirety later). The first half of vial 1 was similar to my other vial 1 experiences, but my complete unable-to-move, bedridden, can't eat herx lasted the first full day, and then by day 2 I was at least able to use my hand to press a button on the remote or my phone, or make an emergency call if I had to. I was still in bed the better part of 3 days, but I was more functional after day 1 as far as being able to hold my water bottle myself and get myself to the bathroom (even if it meant army crawling ;-) ) than I had been with any of my other vial 1 doses. it was a similar story with each half of vial 2, except the fatigue didn't last as long (still the entire first day after doses, but then by the end of day 2, I was able to actually prop/sit up in bed and choke down most of a smoothie, which was another huge improvement. Both doses in vial 3 were almost the exact same as vial 2. The appetite thing seems to have gotten a little better overall--I still don't ever feel like I have an appetite for the first 3 or so days after a dose, but I'm able to force myself to eat something small, or at least drink smoothies with protein powder, to get se nutrients, something I couldn't do with the first 2 rounds.
So in summation, yes, progress is slow, but it IS happening. To use a worn-out metaphor since it's 5:28am and my judgment is lacking from not having slept yet: this whole healing journey is a marathon, not a sprint. And even though the whole concept of taking things slowly--instead of being able to throw myself into the challenge head on with full-force Becca determination--is counterintuitive to who I am as a person, I've learned there's nothing I can do to speed up this process, and if I let myself get over-zealous and try to attack too hard at any given time, I actually run the risk of setting myself back further as far as treatment and healing are concerned (recall that little anecdote about 5 days in the hospital?). So I'm just gonna continue to take things at this pace and trust that God is doing His healing work in the time that He's already determined.
This is the space where I plan on giving updates specifically related to the treatments I'm doing at any given time. Having this all on one page will ideally make it easier to locate treatment-related information without sifting through my archives, although if you're looking for a specific keyword or want to read about a specific protocol, the search function on the site can help with that!