Okay, I've done a really bad job at keeping this updated, but it's been a roller coaster these past few months, and I feel like I've slept through at least 75% of January.
In a nutshell, here's my current progress with the DesBio Series Therapy for EBV.
FINISHED WITH ROUND THREE! Yeah!
If you don't remember (or haven't read the previous treatment blog update), a quick reminder that when I took vial 5 before Christmas I "accidentally" took the entire vial instead of the half-vials I had taken up to that point, and since I herxed very little from the full vial, I went ahead and finished the third round taking a full vial every 5 days.
Vials 8-10 were all very similar:
Mild EBV herxing: fatigue, but not nearly as bad as EBV fatigue usually is; lack of appetite for the first day or so after vials 8 and 9 but vial 10 I really didn't seem to herx much as far as the EBV symptoms go (vial 10 is the least concentrated dose, so that also makes sense).
I had an appointment with my doctor a couple weeks ago and I was given the go-ahead to do round 4 of the DesBio for EBV at full vial dosage AND normal frequency, meaning every 3 days instead of every 5 days. I'll be taking this round (hopefully my final round of the EBV series) backwards, from vials 10-1, and hopefully we won't have to do a fifth round for the EBV. The reduction in herxes throughout round 3 is an excellent indicator that we're getting the EBV buggers outta there! I've actually taken vial 10 already, and will be taking vial 9 today, but I don't want to update on those just yet because I've been having some major herxes from other things (the LDA injections I've mentioned before, I think, but I haven't expounded on them too much yet--I eventually will, I promise, but just know that I'm in the 30% of people who herx severely from them instead of the 70% who get instant relief for a while. This is always fun to discover--I've never been one to stick with the norm ;-) ).
Note: We likely will be starting the DesBio series for Bartonella within a couple of weeks. I'm actually kind of terrified about this series, to be honest, because as the EBV has been killed off, my Bart symptoms have become much more hyper-drive-ish (technical term) and thinking about the herxes is just too much to handle right now, so I'll stop talking about it and take it one moment at a time. The one thing I always have peace about (even when I'm lying in bed crying in pain or [insert symptom here]) is that God has me on the right path, with the right doctor, doing the right treatments in the ways my body can tolerate them.
Stay tuned for further adventures in treatment land.
Happy New Year (10 days late)!
I want to start by apologizing for not updating this treatment blog after the second half of vial 4 like I said I would in my last post. I'm sure you all understand, though--Christmastime, while wonderful, is also quite stressful due to the energy it requires to simply join my family in the living room (ie. get out of bed). I actually held off on my EBV series from Dec 22-Jan 2, just to give myself the best chance possible to enjoy (and participate in) family christmas time.
That said, since my last update I've finished the second half of vial 4 and also made it through vials 5-7. For a short synopsis of how each vial went, see below:
Vial 4 (second half)
This second half of vial 4 sill knocked me down (weakness, fatigue, nausea, just generally couldn't physically move) for the first day, but this is one of the first day-ater-dose days that I was actually able to handle eating (or drinking, rather) a smoothie. The next 4 days didn't sideline me as much as the first in terms of EBV-related herxing, although I was generally fatigued/achy all of those days (weather changes were a big factor) so I was still in bed, or sometimes out on the couch. How this half went was a good sign, we thought.
One word of advice: if you've discovered a certain way to efficiently perform a necessary task in regards to treatment, be very wary of suddenly trying something new. For instance, if you've always used a dropper to measure out half of your vials of EBV, don't indulge your adventurous side all of a sudden by convincing yourself you can pour half of the vial straight into your mouth and that you'll be able to stop once half of the solution is gone, especially if the vials in question contain a minuscule amount of liquid. Doubly especially if you have multiple chronic illnesses that both slow your reaction time and affect your perception and ability to judge things in a timely manner. I say this, of course, because I did this exact thing on December 20 and accidentally took the entire dose of vial 5 instead of the half dose I'm supposed to be continuing this round. By the grace of God, I actually didn't herx that bad from the entire vial. This was totally surprising! The way I can describe it is pretty similar to the a combination of both halves of vial 4, and noticeably better than any half vial dose from vials 1-3. This was a very encouraging sign!
Since Christmas and New Years were over, I decided to do something crazy.
(Note: I said AFTER New Years, so I'm not referring to any wild NYE partying. The hubby--who had bronchitis--and I had a low-key night here at home, watching X-Men first class on Blu-Ray, and, of course, New Year's Rockin Eve)
Anyway, since I didn't really herx much after accidentally ingesting vial 5 in its entirety, I decided to try taking all of vial 6 at once to see if my vial 5 reaction was a wonderful fluke or if we really are getting a lot closer to ridding my body of this EBV load. As far as herxes go I didn't notice much at all from vial 6, other than the standard fatigue and nausea. I did spend several days in bed after vial 6 but I've gotten really good at distinguishing how an EBV herx feels from how a flare/symptom presentation of any other kind feels, and I'm positive that the lasting fatigue on these days was because I was out of both my thyroid meds AND my adrenal supplement, which not only help with energy but help keep my blood sugar from dropping low enough that it causes problems. Some comparably mild nausea and fatigue related to the vial, but again I was able to stomach smoothies the first day, which is a step in the right direction. Thyroid and adrenal issues aside, this vial was one of the best-tolerated so far. (Remember, as the numbers go up, the doses get weaker)
Since I did okay with taking a full vial with vial 6, I decided to go ahead and do the same with vial 7, which I took this past Wednesday night. In a nutshell: Zero minutes of sleep that night, which always results in a required day of rest the following day, but as far as EBV herxes, I'm not sure there were any super notable ones. Due to lack of sleep, I was sidelined in bed most of Thursday, but thankfully I slept decently well Thursday night (after 2 couple-hour-long naps throughout the day on Thursday), and then Friday I actually had a pretty good-for-me day. Definitely thus far the easiest vial out of all three rounds.
So...there you have it! DesBio Series Therapy for EBV, vials 4.5-7. I see my doctor this coming Wednesday, so I'll complete vial 8 before then, but I'm not making any promises that I'll be able to update this before the trip because I've learned that my body is gonna do whatever it wants to do, whenever it wants to do it, often without warning, so planning/committing to anything specific isn't a reality right now. It drives my type-AAA, INFJ, obsessive-compulsive mind crazy to not be able to plan in advance, but there's no good that comes from dwelling on it so I just have to accept it for now and know that someday I'll be back to planning things again (although my planner will always have spots penciled in for relaxation, alone-time, fun, and self-care).
This is the space where I plan on giving updates specifically related to the treatments I'm doing at any given time. Having this all on one page will ideally make it easier to locate treatment-related information without sifting through my archives, although if you're looking for a specific keyword or want to read about a specific protocol, the search function on the site can help with that!