Jemsek Specialty Clinic (First trip - 6/8/2017): Video/vlog and written updates below (more to follow as health allows)
I know it's been a few weeks since my first visit to the Jemsek Specialty Clinic, and I haven't been able to do a proper update just yet. I DID, however, finally at least put together a short video of our trip there/back and a brief update about the appointment. I will be getting into more details later, but this past month, including the weeks since my visit, has been hectic and...an adventure...to say the least. (Like momma always taught me, try to approach difficult life circumstances as adventures, AND as processes which are refining me, making me the woman of God He intends for me to be, on the path to health, restoration, and a full life with my husband for whom I'm so thankful there's not an adjective strong enough to describe it.
I'm including the video update below this paragraph, and it gives you a general idea of how the trip/appointment went (accompanied by some Mandisa tuneage :-) ), and although I plan on going into more detail about our actual plans hopefully soon, I may save that for a video I make after my phone consult/adjustment of meds/supplements/protocol on July 12+1. The text below the video is an update I typed to share on facebook, as well as on our GoFundMe campaign updates tab, so if you choose to read the text instead of to watch/listen the video, if any references seem out of place, that's likely why.
And here is the text update we/I wrote for those following our story on Facebook/GoFundMe:
D.C. Update (Yep our Wildwood W traveled with us–#funwithW)
We ARE in a battle, my friends, but we ARE going to win. And I'm not just talking about myself, I mean any of you reading this. Even on the worst days, there IS hope.
Keep fighting. Keep getting up. And I can't wait until we're all back to LIFE.
Until then, God bless, always,
I just wanted to update y'all on a couple of things.
*If you're primarily here to see the Lyme Disease Challenge video, please feel free to scroll near the end of this post where it's embedded*
(apologies in advance for typos; I can't proofread right now and the Weebly app doesn't help autocorrect as well as some others do, making my neuropathy an issue on touch screens)
My appointment with Dr. Jemsek in D.C. is on Thursday, the 8th...yes, that's right–TWO DAYS from now! We are VERY hopeful about this appointment, and we are trusting God, fully, to lead us to healing through this top doctor and his treatment plan. At this point in my journey–at this moment in time–as I've mentioned in other places before, this is the only option we have to truly attack and kill these buggers at the level they've advanced neurologically with me. We know the treatment won't be easy, but we are claiming, in the name of Jesus Christ, that this treatment will end up being what gets me on the road to lasting health and restoration, and gets US back to truly LIVING life as a young couple together.
We wouldn't be able to even fathom making this trip or starting these treatments if God wasn't directly leading us there, and so far he has helped us, by means of major blessings via donations from family, friends of family, friends, friends of friends, acquaintances, and other beautiful souls who have shared our journey and GoFundMe campaign, and have helped us out financially, knowing that not one cent of the appointments or treatment is covered by insurance, with the initial 9-month IV antibiotic course running roughly $50,000 for the treatments alone (not including the travel, hotel, extra test or appointments costs, etc).
We are beyond grateful for anyone who has been able to donate, of course, and we are also just as grateful for anyone who shares our story, our GofundMe campaign, has said a prayer for us, or has shown support in any way possible – we appreciate you and we love you all!
If you want to check out our campaign, and if you feel compelled share it with others, as well, that would be amazing and again, a huge blessing. The amount it shows is raised includes all of 2016 as well, for treatments I needed and was doing at that time, so the total amount raised so far is not all for the Jemsek expenses and treatments. We are a little over a tenth of the way to covering the initial $50,000 but we do still need help, which is exactly why even just sharing and getting out story out there is a major blessing to us.💚 We are 100% putting the financials in God's hands and trusting Him to reveal ways we can work it out or to work it out in a way only known to Him.🙏🙌
To help me get this life-restoring treatment and/or to to share my/our story, you can go to:
gofundme.com/beccadoss (if you're reading this and that is not linked yet, it's because I have to wait until I can post from the computer to link it, but I will when able!).
We feel so hopeful about this visit and treatment, and just ask that you please keep us in your prayers, as we know the road ahead is not an easy one still yet. Starting with the trip (we leave tomorrow), since traveling brings its own set of special circumstances and precautions hag have to be taken. But we also know it will all be more than worth it once all is said and finished. I will be updating as soon as I'm able, either on here or on here via my YouTuhe channel, because we do plan on trying to vlog some of these visits and experiences now, as well, since I've got a channel up and running, and it's sometimes easier to talk to a camera than to convince my fingers to cooperate to type. :-)
Speaking of my YouTube channel, Rog and I did the Lyme Disease Challenge (FINALLY!) and took a bite out of Lyme on the very last day of Lyme Disease Awareness Month this year. We did the challenge on Facebook live, because we thought that would be an interesting format, and I uploaded that original video to YouTuhe afterwards, but we share some facts, some resources, and take a big bite outta Lyme below, if you feel inclined to check it out (we had fun doing it!).
Thanks for reading (and watching, if you wanted to) friends! Hopefully I'll be able to update fairly regularly while seeing Dr J, but if I disappear, just assume treatment is going well, but that "going well" means herxing and unable to update frequently, and know that I will be back, because I AM getting back to life!